OM STORIES
Staying Centered
Tonight we have another chapter from Julie during her marathon training. This entry sheds a lot of light on the challenges and importance of being a Supporter of someone with a neurological challenge. At Outdoor Mindset, we understand this important role, which is why our Membership and programs are also for Supporters. Take is away, Julie:
Week of August 20, 2012
Last night I went out for a run after my husband got home from work. It was a beautiful night and this is the most unbelievable place to run. This little town of Djursholm. By spring and summer there are running paths by the ocean, to the golf course, around town and by winter they are cross country skiing paths.
I saw a fellow trainer wearing the I'm Running for the Stockholm Marathon shirt. I felt cool, like I was in a club and she and I for a brief second knew we were in it together as we were running on the same path deep in the wood while seeing the water peeking out from between the trees. I was running as the sun was starting its descent. I felt like the animals were watching and guiding and helping me along. Does that sound weird? I feel weird having said it, but it's the truth. Maybe Outdoor Mindset is making me more outdoorsie after all. They are, after all, the guru's in helping all those people living with neurological diseases get out there and feel life, feel the elements, feel that they are not alone. The breeze, the smells of the dirt and leaves, the little chirping and scuttling of birds and other unidentified animals were all there talking to each other guiding me and my runner friend in those woods for that one stretch of path over 5 minutes or so. I'm not so outdoorsie but I was hoping for the rain to come. That would've rounded out my experience somehow. I talk to my mom out there, in my head of course. Not out loud. I don't listen to music, I like hearing the sounds around me and then I can also think a lot more and talk to Mom. Again, weird I know, but somehow it's comforting.
If only it was as easy as the push of a button...
I remember when she was sick I would go to the gym all the time. It was the way I let out energy and kept centered throughout her illness. So, several years later, when I found Outdoor Mindset, I realized that they were in the process of creating something important; a community of people encouraging each other to use exercise to cope with the stress and the grief of caring for a friend or a loved one with a neurological disorder. I saw immediately that OM was so aligned with my belief in exercise as an important coping tool; that their programs could be valuable tools for those fighting neurological disorders as well as those working through their grief. So I decided to contact them and they matched me with a partner (across the globe, but close in life experience), encouraged me to find an outlet that was the most aligned with my needs (raising awareness and funding for ALS research) and continue to support me as I work towards my goals.
So, I run another day for you Mom, for me, for our family. I run for all those living with a neurological disorder. I'm thankful that Outdoor Mindset is out there with the hope of helping all of you affected by a neurological something.
Until next time,
Julie
Going the distance....together.
13.1 miles is a long way to run. I've never tried to do it and am not sure I ever will (please don't challenge me). But with summer in full swing, it turns out that our OM Members are in full swing, as well, and are tackling some huge outdoor adventures together - like running marathons. Some people may think that a personal match made between two people on different sides of the world may be a bit hectic and unorthodox. However, we think when you have something in common as personal and important as being a supporter and caretaker of someone with ALS, it closes the distance and makes it feel like the other person is right there for every step of the next journey together - even if that is training and running a marathon. That's what Julie (in Sweden) and Jan (in Colorado) think, as well. But I'll let Julie fill you in on the rest and give you a bit more background... and stay tuned because there's more to come soon! ~Jill
Here's the full download from Julie:
I am not a runner. I didn't even like to run. So naturally I've signed up for the Stockholm Half Marathon on September 15, 2012. This is my story.
My mother died of ALS in Oct 2005. I was very involved in her life battling ALS, in general, but specifically while she was in her last few years combating the disease with strength and hope. Ever since then I've wanted to do something to help raise awareness and money towards a cure for ALS. First I needed to heal and step away from my personal experience for awhile. I needed to let my mind and body live life again - happily without worry, pain or fear of how my mom is doing that day and what I might face looking into her eyes but still needing to smile and laugh with super human strength. I come from a family rooted with love, good values and a foundation stronger than most. A family that has faced challenges, adversity and euphoric times; who's core has been shook but is strengthened by facing challenges head on and believing in positive energy, living a life that makes a difference. We believe it's how you live life that really matters.
So I fell in love, got married, moved to a few countries, worked, had a few kids and breathed fresh air again. I am proud of my two children and family, in love with my husband and love where life has brought me today - the journey and all. I am 37 years old and from New Jersey but now living in Djursholm, Sweden (a little town outside of Stockholm). As I was emersed on Facebook, I saw a friend's post about this wonderful organization called
. It's an organization who's mantra is: to unite and inspire people affected by neurological challenges through a common passion for the outdoors. It screamed my name and therein began the end of my search of figuring out how to raise awareness for ALS. I emmersed myself in the website and immediately signed up and reached out.
The road ahead... running!
Being that OM's mantra is uniting people affected by neurological challenges; they immediately connected me to another woman, Jan, who lost her Mom to ALS. Together Jan and I will be running in separate races across the globe from each other - she resides in Colorado, I in Sweden- to help raise awareness and funding together towards a cure for ALS. Please join us on
this blog
to follow our journey and get to know us on our mission to make a difference and find a cure for ALS. We will also be raising funds for the ALS Association on their website,
.
Now the best part is going to be following us on our path as we run in our separate races across the world while trying to raise money and awareness for ALS. We will share our emotions as caregivers and daughters of people with ALS. We hope to reach others affected by ALS or any neurological challenge on our blog. Oh, and there will likely a few belly aches and pains as we train and keep it real.
I'm not exactly a natural runner but I figured if my mom can endure a 5 year plus battle with ALS with superhuman strength, head on and with relentless hope then, well, I can run a half marathon. I hope. I thank goodness I have Jan, a natural and professional at my side helping me as she trains for her two races in August and October.
At least the view is nice in Sweden!
So I'm running. I'm running to support my fellow OM member Jan who's in CO running for the same reasons I am - our buddy support system. I'm running for all of you living with ALS, for all of you with a loved one living with ALS, for all of you that have lost the battle to ALS, for all of you that know what ALS is and want to give it the big finger and for all of you that want to take the stairs but have to take the elevator because of ALS. I'm running for you, Dad, who would've gone to the poorhouse (and I think almost did) figuring out how to fight this disease for her with all of the homeopathic, holistic and cutting edge non-insured covered drugs and procedures with the hope of saving your love and soul mate. I'm running this for you Mom - my inspiration on how to fight and live large until the end.
Follow us along as we train. And if you're now intrigued, check out the
to understand all that this wonderful organization does to help people affected by a neurological challenge and why getting outdoors in any shape or form can heal. There are many ways to be involved. Perhaps you may want to join too?
~Julie
Can Do? YES YES YES!
We are so excited to announce a new partnership with Can Do Multiple Sclerosis, an organization we have greatly admired from our creation and along every step of the way. Can Do MS
is a leading provider of innovative lifestyle empowerment programs for people with MS and their support partners. Leveraging the powerful legacy and principles of former Olympian and organizational founder Jimmie Heuga, Can Do MS has helped thousands of people living with MS reclaim a sense of dignity, control and freedom by empowering them with the knowledge, skills, tools and confidence to transform challenges into possibilities.
What inspires us most about Can Do MS, and probably what connects us most deeply, as well, is their positive outlook on living with a neurological challenge. They say that by focusing on what you can do, their programs can provide a whole new way of thinking about and living with MS. And now, as a partner of Outdoor Mindset, we can focus on ways to do this together to serve all of our members!
We've made some great strides on being able to serve our community of MS Members, and our partnership with Can Do MS is going to provide us even more opportunities and insights on where we should go next.
Here's a great story from one of our Outdoor Mindset Members and Guides living with MS, with a serious 'can do' attitude, who recently enjoyed a great hike with through OM Meet-Up Groups:
Sandy joined Outdoor Mindset looking for some hiking partners. Sandy is a massive and serious hiker and after being diagnosed with Multiple Sclerosis, continued her hiking passion using forearm crutches (along with doing some other awesome adaptive sports like monoskiing and handcycling!) She says she's still a pretty serious hiker, although she's had to adjust her expectations a bit with a slower pace. She's had trouble finding hiking partners because her pace is a little slower than the average hiker, however she can seriously hike all day - like 11 miles!
Sandy attended a recent Outdoor Mindset Meet-up Group doing the Twin Lakes Hike near Boulder, and here's what she had to say after:
"It was so wonderful for me to have such great company for a hike in one of my favorite places in the world. And I think we were so well matched as far as hiking ability! And how wonderful to have hiking companions that were not freaked out by my crutches and I wasn't the weird, disabled one trying to keep up with the able-bodied folks. Instead, I just was one of the group and it was so very lovely. Thank you so much for setting this up!"
And Sandy wasn't the only one feeling inspired that day. Another hiker from the Meet-Up group wrote in:
"It was good to spend time with others who have similar conditions. And what an inspiration Sandy is - wow."
I'd say that was a pretty exceptional day for all! We are SO thrilled to be able to help nurture this experience between our Members and can't wait to spread the love with Can Do MS, as well!
Don't forget to check out our Meet-Up Groups in:
Boulder, CO
Hanover, NH
Cincinnati, OH
...and more to come!
Jill
Sometimes you just need a giggle!
Life can be stressful… I don’t think anyone would deny that statement. With a dog post-ACL surgery waiting for me at home in a cone (which she hates!), the expenses and stresses of moving to a new town, and what seemed to be a slew of lame things happening to my friends weighing on my mind, I was walking home from work one evening when I passed the Bozeman Center for the Arts and noticed a strategic piece of graffiti that brought a smile to my face. Someone had spray painted a ‘F’ in front of the word ‘Arts’ on the sign outside the building so that the sign read “Bozeman Center of the Farts”. Immature – yes. Vandalism – also true. Funny – without a doubt! I found myself laughing the rest of the way home, and
MAN IT FELT GOOD
. For me, sometimes I just need a good laugh to help turn my mind and my day around, and I know the others on the Board of Directorsfor Outdoor Mindset feel the same way. That is actually one of our main values
we wanted preserve when creating Outdoor Mindset, to incorporate humor in all that what we do. We want to make people laugh and smile, despite any other neurological craziness going on in their lives. Sometimes we can be quirky… would anyone agree with that? I mean have you seen the video we submitted for the
Cultivate Wines Non-Profit video contest, The Give
(Oh yeah, and also, please vote for us here every day from now until June 30th so we can win some moolah to spend on our Members!) I don’t think you could NOT crack a smile when a suited up Kyle Martin comes rolling down the road towards the camera and then almost runs right into the thing (right at the 1:15 mark for anyone who may have missed it. Your welcome, Kyle.)
So please, try to have a giggle. Sometimes you can’t just go out and find it when you need it, so let it find you, too. No matter what’s going on in your day, in your week, or even in your BRAIN, try to find a smile or some laughter somewhere out there because I promise it’s going to make you feel better.
“The most wasted of all days is one without laughter.”
- E.E. Cummings (<< See, it's not just me that thinks so... this famous guy backs me up)
Laughing all the way,
Jill
Hold on to your seats!
SPRING MADNESS!!
What season do you think is most productive for new ideas, adventures, and stepping out of the box? Is it Fall/Winter when leaves start to turn red/brown and then it gets to be -30* outside? Or is it Spring when flowers start to bloom, the grass turns from brown to green, and the sun is constantly shining outside? I’ll let you take a guess which season I’m leaning towards for my final answer. At Outdoor Mindset, we have a history of Living Big in the Spring. Way back when, when Outdoor Mindset first got started, a great majority of the Board took a trip to New Zealand in April of 2010. For two weeks we explored the South island, and backpacked, beach-camped and bungee jumped through that amazing country. You can check out our full adventure here. And while that seems like so long ago, and just like yesterday all at the same time, the Spring tradition continued last year, when we launched our first ‘March Madness’ fundraising campaign to help raise funds for our Guide/Traveler Program. This included activities including 5ks, huge Adventure Races, and even mustache growing to help spread to OM spirit.
So now here we are, Spring 2012, and how are we going to top ourselves this Sping? Well, there is LOTS going on at Outdoor Mindset, and that’s an understatement. We have two Board Members traveling the world for a year (and skyping in for Board Meetings from beautiful places like Thailand! Checkout their blog here) two Board Members about to take a 4 month adventure to Costa Rica, two moving out to Bozeman, MT (and taking OM with them!), two with new babies this year, Med school domination on the East Coast, and much much more. PLUS, we just hired our first part-time staff member (Welcome Patti!) to help expand and develop our membership programs, which is huge for us! AND, like that’s not enough, we just launched our new fundraising campaign, appropriately titled ‘Spring Madness’ to get people outside, trying new things, and join in on the fun that Outdoor Mindset likes to explore during the Spring Season, while raising funds for our Meet-Up Groups.
Check out our Crowdrise Page to see all the amazing things we’re doing for this Spring Madness campaign, and get involved in a project, or just flat out donate! Like I said, our focus for this campaign is to raise funds for our biggest 2012 initiative - Outdoor Meetup Groups within our membership program- to strengthen connections and inspire members to get outside. What a better way to build a connected Outdoor Mindset membership than to get outside together? Since many expenses go along with managing this program; such as the technology platform to manage events, labor costs associated with managing the program, outreach materials, food & beverage costs, rental expenses, etc., we’ve set at $10k goal for Spring Madness and need your help to reach that numbers. So come get involved, join in on the fun and start your own pattern of Living Big in the Spring… we wouldn’t have it any other way!
And just in case I wasn’t clear –
to join in on our Crowdrise Spring Madness event, donate, or for no other reason, just to see how cool we are. :)
Hope you're all having a great week - and Happy Spring!
Jill