Super Woman Sally

Sally is an old friend and colleague of many of us at Outdoor Mindset. A few years ago, she scared us all senseless when she was in a serious backcountry skiing accident in Jackson, WY. We, along with her 8 billion other friends and admirers, have had the pleasure of rallying around her and watching her come-back from this accident. 

She is a true inspiration and rock star, and it's an honor to have her be a part of the Outdoor Mindset family.

Raised in Colorado, I started skiing at age three. (But I went in my dad’s backpack in the backcountry at six months old!) My family has a cabin in Leadville, so when I was young, I skied at Ski Cooper. Once my brother and I “graduated” from Ski Cooper, at about age 12, I went over to Copper Mountain. I skied there for most of my younger years, and at age 15, I started the Junior Ski Patrol program. While I was in college, and for a few years after, I was a volunteer patroller, with skills as an EMT.

After college, I worked many ski-related jobs in Boulder, including being the online editor for SKI Magazine. I worked there for a couple years, considering it my “dream job.” I skied in places like Canada, New Zealand and Chile, and trips like these were fully paid for- but I was laid off from that job. That was a Wednesday, and by Friday, I had another offer on the table.

I accepted that job, and within two week, I packed everything I needed in my car, and headed to Jackson, Wyoming. I absolutely loved it there: the PR company I got a job with,

Denny, ink.

, had major ski industry clients like Arc’teryx, Dynafit and Nordica, so I went skiing for part of the day and it was considered “work.”

Skiing with three of my Jackson friends one Saturday, we rode the tram up at Jackson Hole Mountain Resort, and hiked to where we wanted to ski. We were going to ski “Once is Enough,” but we had to ski another, narrower run to get there. When we got to the top of our run, we clicked in, and my friend went first. He gave me two thumbs up, telling me it was safe to go. I started downhill, took a few turns, and then my ski fell off. I crashed, and slid downhill for 550 feet. I came to a stop by bashing my head on a rock. I was unconscious, but everything else was fine. My one friend who went first hiked up to me, and my other two friends skied down.

Once I got off the slope (which took a really long time), I was airlifted to a hospital in Idaho Falls, where I was placed in an induced coma. Even though I was only in Jackson for a short time, a lot of friends I had came to visit me. I stayed there for three weeks, and then was okay to fly back home, to Colorado.

I had multiple injuries—a broken back, neck, and ankle, and I had to have back surgery to fix that break. I wore a neck collar for a long time in the hospital so that my neck would heal. And I still have foot problems from the break. I wasn’t eating at that time, so I have a belly scar from where they put in the feeding tube. I lost a ton of weight- 30 pounds- so they gave me a smoothie with stuff that made me gain weight.  I remember when I first got to eat by myself, and I forgot how great that was.

A few months after I lived at home, I got to go back to Jackson and thank all the people I knew there. Since the PR company I worked for had some clients in the ski industry, a lot of ski stuff was donated, which gave people another reason to come.

There were a lot of things I had to go through to recover- physical, occupational, and speech therapy. And even though I was 25 (and I turned 26), I lived at home. Living in Colorado Springs wasn’t great, because most of my friends were in Denver or Boulder. But I needed that time to still recover- I wasn’t able to live on my own.

Now that I live in Boulder in a condo that my parents helped me buy, I’m in a much better spot- I can see friends more often, and since I don’t drive, I can take the bus everywhere. Getting back to the life I used to have will never happen, so I struggle with loneliness. My friends from before my accident are finding new jobs, getting promoted, and/or having kids, but I feel like I’m stuck in the same place. I used to have a great job, and was doing really well at it, so this injury has stopped that. I just have to find a new way to gain happiness, beyond my job. I haven’t gotten there yet, but I’m still working on it.

I am so glad that I have come this far, when I was so very close to death during my accident. But the way my friends acted during my accident saved my life, and luckily, worse things didn’t happen with the bones I broke. My life will never be the same as it used to be, but I’m lucky to be alive so I can adapt to the changes.

Post accident, there are a lot of things that are important to me now, that I never used to consider important. Balance is one of them- I still have trouble walking. I don’t ski like I used to, and that was so important to me that even my job revolved around that. Riding bikes is a problem- I never realized how balance plays into that. My parents have kept their tandem, though, so I can still get my biking “fix.”

Yes, things aren’t how they used to be, but I’m learning new ways to do them and find other things that make me happy. I’ve now realized that the sports I used to do were the main source of my happiness. Now that I can’t do them the same way, I’m trying to learn other things that make me happy.

Outdoor Mindset

has really shown me that there are more people who struggle with the same things I do, so it’s good to know that I’m not alone. It’s the simple things like having coffee with another

Outdoor Mindset

 member that matter the most. I find pleasure in the simple things now, because I’ve realized how important they are. Before my accident, I thought bigger things were more important—like traveling, being a bridesmaid in someone’s wedding, or having success at work. Now, it’s the little things that matter the most to me, and Outdoor Mindset helps with that.

A Journey Worth Traveling - Ann Nicocelli

Today we have a guest blog from Ann Nicocelli, an Outdoor Mindset Member in Washington DC who does not believe in limits. Ann was diagnosed with a brain aneurysm and had brain surgery just over a year ago. She is a dedicated athlete, mother, and lover of the outdoors and she has not let her diagnosis define or limit her throughout her journey. She has worked back to amazing strengths after surgery (back at 200% she says!) and continues to compete in triathlons. She is an inspiration to us all.

In Retrospect: One Year After Brain Surgery...

A Journey Worth Traveling

My one year anniversary since brain surgery was two days ago - on September 10, 2011. Trying to wrap my arms around everything that has happened over the last year is a bit surreal. It has been quite a journey. In a way, I feel like it has been a lifetime. I will begin with where I am today, but I must share that the road to getting here has been full of twists, turns, bumps, and near misses.

Nothing was lost and much has been gained through brain surgery...really. I feel extremely fortunate to be here with all of my mental and physical function back at 100% and I actually feel like I am at 200% compared to how I felt prior to surgery. This is due to unending support from family and friends, tremendous medical skill and effectiveness, being physically and mentally fit, a deep passion for the outdoors and a significant amount of luck that the stars aligned to bring it all together.

The mission of Outdoor Mindset resonates deeply with me. My connection and love for the outdoors brought me through my most challenging elements of brain surgery. When I was looking for hope prior to surgery, it was hard to find. Outdoor Mindset brings this all together in one place. It is an organization where you can find information, hope, and friends who have traveled a similar path with common inspiration from the outdoors.

Here is my story...

July 16, 2010: My daughter sat in the corner on a stool in a private room in the emergency area of the hospital. She was occupying herself in a very mature way for a 5 year old, while I went for tests and spoke to the doctors and nurses. After what felt like hours (ok…it was hours), the ER doctor came back in and said that the severe vertigo that I had been experiencing was likely due to stones in my inner ear being out of place.

I didn’t know what this meant. I just wanted to understand what would make the intense nausea and dizziness go away. He then offered that the results of the CT of my head had come back and the blood flow from my neck to my head was normal. This information gave me a split second of relief when he paused, looked me in the eye and added, “the CT also showed that an aneurysm was found in your brain.”

My foggy, pained, nauseous head thought, “What?? an aneurysm? What is that? I am a healthy athlete; it can’t be that big a deal. This is about vertigo and getting rid of it as quickly a possible.”

I heard the doctor. He explained what it all meant in technical terms and then softly said that I didn’t need emergency surgery but that I should set an appointment with a neurosurgeon as soon as possible. He went on to say that it was small…4 millimeters…on the left side…and again he observed that I did not need emergency surgery. I think this last reflection was supposed to provide relief.

I look back on that day and the weeks that followed and a flood of thoughts, emotions and memories come to mind. One thought that is very clear is that I know that being an athlete and my connection to the outdoors has made me stronger, kept me centered, and continues to play a pivotal role in successfully taking me through tremendous adversity. It has truly saved my life.

Surgery:

The more I learned about aneurysms, the more I realized how serious and life threatening this condition was. In preparing for surgery you need to plan for results as varied as death, permanent brain damage, or what is hoped, coming out of surgery stronger than when you entered.

After researching the best neurosurgical facilities, I ended up going with Johns Hopkins Hospital in Baltimore. Ironically my lead surgeon, Dr. Alexander Coon, was also a triathlete. His strength as a surgeon combined with his training as a triathlete and connection to the outdoors became important to my success. Dr. Coon dealt with the severity of my condition while also understanding the approach that an athlete might take going into surgery and coming through it.

I had signed up for the Luray and Nations triathlons prior to surgery. They were supposed to be my first races. I had been a cyclist but decided to jump into tri training to see how it felt. I was ready to go but I ended up storing all my gear and canceling my participation in both tri's. In order to avoid the aneurysm rupturing, I couldn’t do anything that would increase blood pressure in my head prior to surgery. Even though I canceled (or in my mind postponed) the races, I kept training at a scaled down level up until the day before surgery. I swam, biked or ran regularly. Because my surgeon was also an athlete, I was able to manage this under his watchful eye. The training was essential. It kept me balanced, focused, and strong.

I approached surgery almost as if it were race day. I knew it would be hard, that there was an element of unknown, and that I had to be stronger than I ever had been in my life to get through it in a positive way. The surgery ended up being more challenging than expected. I almost lost the ability to speak, understand language, and control the right side of my body. This path was fortunately averted. Instead, I came out of surgery with all of the brain function that I went in with, along with euphoria and an acute awareness that comes from a near death experience. It turns out that the original vertigo, which put me into the hospital, was unrelated to the aneurysm. Additionally, the wall of the aneurysm was so thin that it would have likely ruptured very soon without surgical intervention. I am blessed that the aneurysm was found and forever thankful to my surgical team for bringing me through it so successfully.

Building Back Better:

The memories after surgery of relearning to walk up stairs with a physical therapist are very recent. I made the decision to focus on endurance training because it not only made me happy, I felt like it was the best way to put the fatigue and post surgical healing behind me. It is important to know that after surgery, your brain can heal. Surgery is a traumatic process. There is an evolution that you and your brain will go through of reconnecting. It is actually a beautiful thing to experience. The healing power of the brain is inexplicable in words.

Although I worked out right up to the day before surgery, I suffered a significant loss of strength and endurance through this process. This is typical. My upper body strength disappeared. Under doctor’s orders, I was not allowed to lift anything heavier than a milk carton for 3 months. I went from being able to comfortably perform full push-ups before surgery to not even being able to do one push-up on my knees after surgery. In addition, after the surgery my ability was depleted to the point of not being able to swim 10 meters in a pool or run half a block without being winded. (This is rather traumatic to a self described triathlete!)

I have had a lot of "first's" since surgery...the first time I walked again, the first time I ran, the first time I put a bike helmet back on my head (ouch!), my first triathlon, and so much more. In retrospect, I have learned a lot and healed in a way that has been better than I could have imagined...admittedly fighting every day to build back stronger. I have kept a journal which tracks my daily developments. It also tracks the fun, comical stories like when I went into the bike store a week after I arrived home from the hospital - yes, the true sign of a diehard gear geek! I still had 28 staples in my head and thought it might be the only place I could go and not be stared at...and maybe even be cool if they thought the staples were from a bike jump. I also decided at that point that I could have had the best costume and should have scheduled surgery closer to Halloween. I digress...

Severe fatigue post surgery is common. For me multisport training was a way to look straight in the face of it all and say “that is not going to be me.” Twelve days after the operation, I went for my first run and have been training ever since. I ran a 10k thirteen weeks after surgery in just less than an hour. Completing the race was a triumph. I used this run to qualify for the National Half Marathon in Washington, DC. My first triathlon was Columbia International Tri (1.5k Swim – 41k Bike – 10k Run) on May 22. I raced this with my surgeons Drs. Coon and Geoffrey Colby, also known as A1 and G6 when they are ripping up the roads. I also raced the Luray International Tri, the same distance, on August 13. This was a huge victory as this was a race I had cancelled a year ago to prep for surgery. Yesterday morning (September 11) I raced the Nations Tri in Washington, DC. The swim was cancelled due to flooding, but it was still a great bike and run! It felt awesome to join the two races that I had cancelled last year. In a way it became closure on a year of building back. I can now think big in a new way and define my race schedule based on what will be fun and where I want to take multisport training moving forward.

Healing is an arduous process. There are challenging days and easier ones. You realize there are times in your life when you need to ask a lot of your body. It is so clear to me now that your body can only respond at the level that you take care of it. I am now having fun indulging myself, pushing the athlete in me forward, and seeing what my body and mind can do. I feel stronger, more focused and self realized than when I went into surgery and it is invigorating. Training for me used to be just a way to stay healthy. It has now become an integral part of my life.

CycleLife invited me to join their tri team. The team environment provides tremendous support and our team is a fabulous group of athletes. I spend more time now focused on my nutrition and recovery in between workouts. It has made all the difference in my overall quality of life. I am looking forward to adding cycling and running races to the calendar to supplement the tri's. This will all be coordinated with Steve Dolge, my ever supportive coach.

Life After Brain Surgery:

It would be cliche to say that my life has gone back to normal. There really is no such thing. I am back to being a dedicated mom, to working in the international corporate world, to enjoying time with family and friends, and to living an active, athletic lifestyle. I have been medication free since a week after surgery and I enjoy a life with a sweetness, beauty and calm that comes from facing your own mortality in such an intimate way. There are daily challenges that life brings that now seem easier to put into perspective.

I am proud of being a brain aneurysm survivor, thankful for my wonderful medical team, family and friends, and excited for the future that has been given to me. That precious box that holds the meaning of life has been opened, and I will treasure it every moment.

My connection to the outdoors and endurance training has made me heal faster, stronger, and in a more well rounded way than I could have ever imagined. If you have brain surgery on the horizon, from my heart, I wish you all the very best. A friend who is a cancer survivor told me that this process would make me a warrior. It will do the same for you. You are stronger than you realize, make sure you smile and even laugh a little - or even a lot, and know that many others are with you.

- Ann Nicocelli

WOW - talk about an amazing story!

Stay tuned because later this week we'll be posting 20 things Ann has learned from surgery, and what she wishes she had know before surgery.

Happy Monday!

Jill