Still in the Game

Greetings Outdoor Mindset friends - I hope you all had a fabulous weekend!

Everyone always needs a bit of inspiration on Mondays, and I have just the story for you. Today we have a guest blog from Outdoor Mindset Member

Don, who is an avid lover of the outdoors and the sport of hunting.  Don also has debilitating Multiple Sclerosis. Don's attitude, similar to that of Outdoor Mindset's, is that nothing is going to stop him from doing what he loves, and he's broken down many barriers and hurdles to make that happen. I love the title Don has given his blog - Still in the Game - because that's exactly what he is... still in the game, and a major player at that! Don't ever forget that you are ALL (neuro challenge or not!)

always

still in the game, and take strides to make sure you are a major player, just like Don.

Still in the Game

It's been several years since I've put together my story so when I was asked by my new friends at Outdoor Mindset to write something up for their blog, it took more serious thought than I expected. I do my best pondering in the woods so I'll head out to a little strip of high ground between our food plot and a pond. That's where I'll begin my tale.

As I absorbed the peace that is so often my companion when I'm in the outdoors, my thoughts turned to the road I've traveled to get to this point in my life. A person never knows which way the path will lead. We encounter many forks along the way, some of which lead to good stuff, some bad. Either way we live, learn, and move forward. Sometimes the path is smooth but often it's just plain rough and feels uphill all the way.

Finding out you have a serious illness makes a pretty nasty bump in the road. Living with the progression of that illness is rough. When we are faced with something like that, a person has two choices. We can either give up and crawl under a rock or we can play the hand we are dealt. I choose to play.

My struggle with a physical disability started in 1996 when I was diagnosed with multiple sclerosis. My world was shaken. Suddenly my future was uncertain. I was 31 years old with a growing family and a solid career path teaching and counseling that I truly enjoyed. Thinking back, there really was no choice. It simply needed to be faced and that was that. My wife Leann and I waged a silent battle against the disease for some reason not wanting to burden any family or friends unless we absolutely needed to. That time came all too soon and by 2004, I could no longer function well enough in my job and needed to go on disability. My mind was fine but I was down to one usable leg and one arm. Combine that with dizziness and fatigue and I wasn't doing my students much good anymore.

Going on disability felt like giving in but there were no other options. Thankfully I had some time to prepare things so I could still be in the woods and not trapped in the house! Still… I needed some serious soul-searching to find a new direction. I began to help Steve, a buddy of mine who worked for Babe Winkelman Productions. Babe helped me get started with voice-recognition software and I communicated with folks calling in looking for information about hunting and fishing opportunities around the world. I

would put them in touch with outfitters who could offer the services they were looking for. Interesting work and I met lots of great people but I knew it wasn't the direction I was meant for.

I was visiting with Steve and he made an interesting suggestion. He said that since I was already researching ways to stay in the woods or on the water maybe I should use my computer knowledge and find a way to share that information with others. I asked him to tell me more and he suggested I build a website to share some of my information. He said "you can't do things the way you used to but what you do is a far cry from sitting on the couch watching hunting shows and wishing"

At that time, information about the outdoors for someone with a disability was all but impossible to find. My wife and I sat down together and figured out how to put the information I had gathered for myself in a format that others could use. It wasn't long before we had a small working website named

afarcry.info

with some basic tips and tricks I had found to be useful. One thing led to another and the site grew almost faster than I could keep up. I'd research things and talk with outfitters during the day and my wife would get home from work and we would add them to the site. Soon it was all I could do to keep up with the calls and e-mails but I was loving it. I had a direction and was doing some good!

Meanwhile, MS was taking its toll on my body. I kept losing ground and wasn't far from being bedridden when the drug Tysabri became available. It was risky because the main side effect was death but the alternative was spending the rest of my life in bed. I couldn't do that as long as there was any option at all. I took the chance and never looked back. So far so good and it's been about six years as I write this story.

As always, there are good days and bad days. I always used to tell people that I would hunt as long as I can pull the trigger. When that day came and my hand could no longer squeeze hard enough, it hit me hard. I came back to the house feeling about as sorry for myself as was possible. Imagine how pleased I was when I got my first sip and puff trigger and could do it with my mouth! It's been five seasons now in which I harvested my deer without lifting my hands from my armrests.

That gives you an idea where I'm at. I am a quadriplegic so things are different than they were when I was able bodied but I've become so much more than I ever was before. I can’t walk but I can and do have a positive impact on so many people. I firmly believe the quote "that which does not kill us only serves to make us stronger". What happened to me could happen to anybody. Whether it be an accident, illness, or other catastrophe, the issue is not what happens to us but what we do with it. If you are new to the game, come on in, and we'll make the most of life together!

Don

Chapter 2

I blinked and somehow more than ten years have passed since I wrote that blog for Outdoor Mindset. 

My original intention was to add a few paragraphs to bring the story up to date. However, there have been so many changes and so much water under the bridge that I cannot bring myself to modify the honest feelings I wrote in that story. I will have to simply sit down and write chapter 2 to bring my readers up to date. While I truly appreciate your attention and your patience when I become long-winded, I will do my best to keep this as brief as I am able. I can certainly understand the difficulties faced by directors when they try to portray a good book during an acceptable runtime for a movie.

Overlooking the Chagress River in Panama

Tysabri kept my MS under control for another year and a half after the end of chapter 1. My worst fears were realized when the side effect of death suddenly became imminent. With only a year to live, I was forced to expand my search for a cure beyond our borders. My family, my friends, and the whole hunting community came together to send us on a trip to Panama for a life-changing stem cell transplant. That brought into my life an unforgettable year of miraculous improvements to my abilities. Among the changes were things like motion returning to my right arm that had not moved in seventeen years, improvements in vision, thinking, and the list goes on and on but that’s another story. Suffice it to say that the changes were awesome in a disease that allows for no improvement.

Shooting from my standing frame 

As the positive changes happened, there were several changes in my family dynamics and I found myself divorced and living on my own dependent upon a team of caregivers working hard to keep me in my home. Just a few years after the successful procedure, I once again got very sick. My kids traveled home to stay by my side during the terrible life-and-death struggle with Guillain-Barre. For weeks, I lay in a hospital bed without vision and struggling to communicate through lips that were paralyzed. Thankfully that storm finally passed and I began to focus once again on my struggles with MS. We traveled once again to Panama for another stem cell transplant with the hope it would counter the effects of the Guillain-Barré. My second treatment brought a new set of exciting changes to my life. My body’s ability to control its own temperature returned to normal and my strength and mental clarity improved dramatically.

Fishing boats in Panama are not very accessible

Throughout the roller coaster ride that has become my life, I learned to do my best to keep up the good fight and to enjoy the blessings that come along as part of every day. My little girl is all grown up now but she travels home from Washington to spend every deer season with her dad. That gives me some of the finest moments life has to offer throughout the year. I still shoot with my faithful mouth control for both crossbow and gun. I have found it is more than just possible for a quadriplegic to consistently harvest nice whitetails, turkeys, pheasants, and even to catch some pretty great fish. I manage my own team of caregivers and lead a happy and fulfilling life still trying to leave world a little better then I found it.

My daughter and I in the deer stand

I am most defiantly still in the game. If you are as well, give me a shout. I love to hear and maybe share your story. If disability is affecting your ability to enjoy the outdoors, give me a shout. I’d love to help.

My first Tom from a wheelchair

Is that just the dose of inspiration you needed on a Monday? Now get out there, get involved, and get cranking on something awesome.

Jill

Social Connections and the Internet: the OM healthcare reform

Remember a few weeks ago when I said there was more exciting research to come...well I've got the lowdown for you all, and it is GREAT news! Like I said before we wanted to focus our research on the three areas that Outdoor Mindset most incorporates in our mission and goals, physical activity, social support, and internet connections. Since I already told you about physical activity, I'll get right to the point with our results from social support and internet connections.

Many studies have been conducted on the roles that social support and networks play in a persons health over time. The results have consistently found that people who have more social support live longer, report having less stress, and have higher levels of physical activity. Social isolation is a common risk factor in people suffering from chronic illness. Many programs that are aimed at behavioral and mental health have used social support groups to increase benefits. Support groups have become a well-known and popular strategy for patients suffering from illnesses. So all in all, having support from people will help create happier and healthier mindsets able to conquer the hardships of life.

The internets role in healthcare is a bit of a newer trend, so not much research has been conducted in this area. However, the research that has been done has great implications for the future and for Outdoor Mindset. In a study conducted to find out how people diagnosed with HIV/AIDS were using the internet it was found that people were using the internet for information seeking, social connection, advocacy, and escape. People using the internet found that having others to talk to via internet gave them support at a level that was very non-invasive in the beginning when they felt vulnerable and scared. People were able to disclose as much information as they chose. This study also exemplified the aspect of how having up-to-date information on the web gave them the availability and access to be most in control of their diagnosis. Participants reported that the internet gave them a sense of freedom to express themselves and to take responsibility for their treatment. This responsibility and control of the diagnosis is what OM is determined to give our members. In this quote from from a person diagnosed with HIV, he says it all, "(the internet) generates an ‘encouraging effect’ because it puts me in contact with men and women who have become infected and who’ve somehow decided to take that on as a challenge, instead of some kind of personal embarrassment or defeat”.

The internets ability to connect like individuals is its greatest asset to healthcare. Like-minded individuals are likely to be more understanding, accepting, capable of supporting, and better equipped to to give accurate information and advice in regards to the diagnosis. The connection that internet gives to people is a sense of support to those that otherwise might be socially isolated. The internet also gives patients the 24 hour a day, 7 days a week availability to information regarding their diagnosis, and in the privacy of their own home. The internet allows people to access information that would not otherwise be available to them outside of a doctor office. The social connection implications that the internet provides are undeniable and most beneficial for people diagnosed with any illness, disease, or disorder. The bottom line is that the internet is changing the way healthcare is available to it's patients. It is changing the relationship between doctors and patients. Patients are now able to take better control over their diagnosis and have a more solid connection with other like individuals. The internet is empowering patients all over the world and most clinicians are jumping on board with the new developments and internet connections. Clinicians are able to recommend websites for their patients to best serve their purpose.

After all this reading and researching, I am happy to say that the results couldn't be more in-line with the mission and vision of Outdoor Mindset. I know I enjoy research more than most, yes I am a nerd and proud of it, but all this info is definitely worth getting excited about! Outdoor Mindset is definitely headed in the right direction and we can't wait to get these connections and benefits going for our members!!

Is OutdoorMindset a beneficial organization?

An obvious YES is the answer to the title question! And before anyone gets offended by my title, let me explain. It was clear from the beginning that the general purpose of OutdoorMindset would be to focus on connecting like-minded people with a passion for living big, overcoming obstacles, and being active outside. During some of the early stages of development it was brought to our attention by our non-profit gurus (Jake and Jeanie) that just because we felt strongly about our vision and the purpose of OutdoorMindset, the government was going to need some proof that OM would help. In other words, we had to define our “Need”.
This has been a very important aspect of our development and we have all worked really hard to back up our vision with scholarly research. We broke down the research into 3 important aspects of OM -physical activity, social connections, and Internet use. As you can imagine there is a plethora of information and research out there on these topics, so as we narrow down our findings, I’ll keep the information coming.
To no surprise at all, we were able to find support in the articles that physical activity is beneficial to health. To take that common known fact further we dug a little deeper. Research studies have also found that people who engage in physical activity are more likely to have hopeful feelings about their future and reach goals they have set. Studies have also found that physical activity not only improved physical health but also improved mental health shown by a more positive attitude and confidence in oneself.
In another study the effects of Green exercise were evaluated. That study defines green exercise as any activity done in the presence of nature. Green exercise improves self-esteem and mood, as well as increases positive long-term and short-term health benefits. Green exercise is exactly what OM is all about!
Many studies have found that participants who engage in exercise on a regular basis have a higher health related quality of life and show a slower decline in general quality of life. In relation to mental health, it has been shown over and over again that exercise and physical activity are related to lower levels of depression. Engaging in physical activity increases the amount of neurotransmitters, monoamines and endorphins, i.e. dopamine and serotonin, being released from the brain. These neurotransmitters are related to positive feelings and the pleasure senses of our brain, thus increasing positive mental health.
As you can see from our research findings, there is definitely a positive relationship between physical activity and both physical and mental health. Being active is a main focus of OutdoorMindset so we are thrilled to have the information to back us up in that area. Being a research nerd who gets excited about reading small black and white print, I am beyond ecstatic from our outcomes thus far and I can’t wait to explore the other topics. More good news to come!