Meet-Up Spotlight: Ohio's Maggie

Meet Maggie, our Ohio Meet-Up group leader. Her connection to Outdoor Mindset runs deep and we're fortunate to have her as part of the OM family. Here she tells her story about her neurological history that has an amazing outcome... because it brought her to our organization!

"I remember one day when I was probably a junior or senior in high school. I came home from school in severe pain and instead of going straight to bed or taking a hot bath, my anger got the better of me and I decided to go for a run. I was so sick and tired of the constant pain and the feeling that I couldn't really be myself. I was fed up and pissed off. So I put on my running shoes and ran.

I don't remember running, but I do remember stumbling into the house about twenty minutes later, doubled over, pressing the palms of my hands into my forehead as hard as I could to keep myself from vomiting. I could hardly see; everything was too bright and blurry. I couldn't talk, because my own voice triggered a chain reaction, starting with the nerves behind my right eye and radiating down my spine. I couldn't eat, because the nausea made it impossible to swallow. At that point, there was nothing I could do but crawl in bed and wait it out. The next day would be the same, but about 15 hours of sleep might give me the energy it would take to make it through school the next day.

It's strange to look back over the last 10-15 years and realize how much has changed. In the days before I found an effective treatment, it was hard to even imagine spending more than a day without pain or nausea. Now, my bad days are few and far between, and I feel like I finally have the ability to be myself and do the things I want to do.

I was finally diagnosed with migraine after my family doctor put the pieces of my genetic puzzle together: my dad had mostly recovered, but had suffered from severe migraine when he was younger, and while my symptoms presented differently, they all pointed to migraine. At the time, I didn't really understand what that meant. I later learned that migraine is actually a brain disease that affects the entire central nervous system, and it explained the severe stomach pain and nausea I'd experienced when I was younger, as well as the cognitive impairment and other symptoms. Several years later, when I was in college in Kentucky, I was also diagnosed with seasonal affective disorder (SAD), which could have a connection to migraine and contributed to the severe fatigue.

During the two years I was in Kentucky, I struggled with pain, nausea, fatigue and sometimes even cognitive impairment, making it difficult to have a normal social life and succeed in school. Medications I had tried before just made me sick, and I didn't know if I would ever find a treatment that would help me be "normal," whatever that meant for me. At the time, I just wanted to be free from the pain. But I didn't realize how many areas of my life were affected until I got better.

When I transferred to go to school back home, I spent the summer working with my doctor to find a treatment. Around the time school started, I was beginning to adjust to the medication that would change my life. I was starting at a new school, with a new major and hoping and praying that this time things would be different. I didn't really like high school, so I had always looked forward to college: the chance to start over, study things I actually cared about and get the real "college experience." Kentucky had been a bust, but going into my junior year armed with a medication that actually worked, I knew things could be different.

And things

were

very different. I was no longer afraid to be around people, worried of what they would think when I couldn't keep up with the conversation or it took me an unusually long time to respond to a question. I could go to events and meet new people, because I was there to have fun, not to merely survive until I could get back into bed. I could run for fun; I could go to parties; I could even speak up in class discussions, because I was able to follow them. That's when I realized how much I had been missing out on. It wasn't just the physical pain and limitations that had made things so difficult, I had also lost my personality, my passion and my ability to make connections with other people. I literally didn't know who I was. It was almost like meeting myself for the first time; I learned that I was actually an extrovert and loved meeting new people. I found a passion for fitness, running, biking and other outdoor activities. I joined a sorority and found out that event planning and fundraising was another passion of mine. I learned photography and picked it up as a minor, because why not? I took advantage of every opportunity I could, and I wasn't afraid to try new things.

When I ran across the Outdoor Mindset

website, I had no idea there was already an organization that combined some of the things I care about most. I am now a trainer for Planet Fitness and I'd eventually like to specialize in working with clients who have neurological challenges and mental illnesses. I feel like I can relate to some of the challenges that those with neurological diseases face, and I know from experience how exercise can change lives.

I also know how important it is to be surrounded by people who care and support each other, especially when you're facing a chronic illness or disability. I was lucky to have my family and a few close friends by my side while I struggled with my illness, and I don't know what I would've done without them. That's why I'm so excited to be a part of Outdoor Mindset and grow a community in Ohio. Through outdoor activity and social connections, we CAN make a difference in the lives of those with neurological challenges!"

Hold on to your seats!

Like I said in my last blogpost: We have a lot going on at Outdoor Mindset right now… and that’s an understatement. But probably the most exciting of all is the fact that we’ve hired a part time Director of Programs and Membership to help manage and develop our programs. And well, she is awesome (again, definitely an understatement!) Patti comes to us with years of valuable non-profit experience, and above all, a passion and excitement to nurture and develop non-profits with great programs and potential – like Outdoor Mindset! So here’s a little shout out from Patti herself, giving you some insight about who she is, and what’s to come with her involvement with OM.

From Patti:

A few hours before Kyle called to offer me this position, I was practicing yoga next to a woman in her 70’s who has Parkinson’s disease and I noticed that as the class progressed, her hands calmed and the trembling slowed. She has a beautiful practice: soft, gentle eyes and strong, graceful poses. We started talking after the class ended and she told me that she was headed to a retreat at Shoshoni in Rollinsville, CO the following weekend. I could tell that it took courage for her to sign up for the retreat. “I drove up there by myself to see it, I didn’t know if I’d get lost on the way, or if I’d even find it,navigating the back roads, but I did and I love it; it’s a beautiful place.” 

What touched and inspired me the most about hearing her plans, was that she was pushing herself to find new experiences; to live her life. She found something that she was curious about and created an adventure for herself. Hearing her story reminded me of how important that is for all of us. To me, that’s what Outdoor Mindset is all about: people connecting and inspiring each other to continue living their dreams. Or, as the Outdoor Mindset team would say, to Live Big!

I’m three weeks into my new position as the director of programs and membership and am so impressed with the incredible job that the board and volunteers have done of laying the groundwork for a successful organization. They are a dynamic, engaged group with a wide variety of professional skills and they are passionate about Outdoor Mindset’s mission. I’ve worked and volunteered in the nonprofit sector for over 15 years. One of the positions that I found to be very fulfilling was as the executive director of the Rocky Mountain Chapter of the ALS Association. While working with people with ALS (Lou Gehrig’s Disease), one of the things that I found to be the most disconcerting was the number of people who found themselves isolated because they didn’t have the support to get out and stay active. Many seemed to cut back on activity long before it was necessary. When I saw the job announcement for this position, I thought to myself, what a great idea for a nonprofit! I’m looking forward to working hard to make this organization more visible and to developing its programs so that we’re able to increase the quality of life for those suffering from neurological disorders. I love to hear from our members, please call or email me and introduce yourself!

-Patti

See, I told you she's awesome! So hold on to your seats people, because with the addition of Patti and our dedicated Board of Directors and Volunteers driving this bus, we’re all in for a wild ride! 

One great thing we’ve already put together is this fabulous (you can saw 'fabulous' on a Friday and it's ok, right?) video showcasing what Outdoor Mindset is all about. Check it out and share it with your friends, family, pets, co-workers, waiters and waitresses, and anyone else who will watch. :)

HAPPY FRIDAY! We hope you are all as excited as we are about the great things going on with OM!

Living Big in Bozeman now, 

Jill

Outdoor Mindset Chili Cook-off 2011 - YUM

Well, they say a thank you is "Better late than Never" and I truly hope you all agree with that statement because we are almost 2 months past our 2nd Annual Chili Cook-off which was on October 23rd at Avery Brewing Company... and we owe everyone who came or participated in any way, shape, or form a BIG THANK YOU, because this event was a huge success for us.

Considering last year we were at a local Boulder park with coolers, an iPod dock, and probably 50 of our closest friends and supporters (and it was STILL awesome), this year's event where

we had around 200 people attend, live music, and AMAZING Avery Beer fresh on tap, we've definitely come a long way!

We also had corn-hole outside and an amazing raffle and silent auction inside with everything from Denver Broncos tickets, Avs tickets, Avery Beer (of course), Moosejaw jackets, Nutcase helmets, Love of Pretty jewelry, SweFish Messages, Kelty Backpacks, a KitchenAide mixer AND coffee pot, and more! The raffle and

silent auction items were amazing!

Then there was the music: Mortimer and Arthur Yoria rocked the house (or should I say tap

room) and were absolutely fabulous. These guys both came out special for this event, so we can not thank them enough!

And THEN there was the Chili: which was DELICIOUS!

Here is where the votes came in for the top 3:

#1: Eric's (or should I say Ember's!) Green Chili

#2: Jill's White Chicken Chili (with a little touch of bacon!)

#3: Kyle's 'Smoked' Texas Chili (his trick was burning the bottom of the pan!)

And, as we promised, here is the recipe for Eric's Award Winning Green Chili:

2011 Turkey Green Chili "Champion" Recipe

2 - Ilbs Ground Turkey

1 - medium onion (chopped)

3 - cloves garlic

1 - green pepper (chopped)

1 - 4 oz can green chilies (diced)

2 - 15 oz cans white beans

1 - 28 oz can medium salsa

1 - jalapeño (diced & seeded)

2 - Tbsp sea-salt (I use closer to 1 - 2 tsp)

2 - Tbsp cumin

1 - tsp coriander

1 - tsp oregano ( I use dried)

2 - cups chicken broth

Sauté garlic & onions with olive oil till "glassy". Add turkey & brown with salt & pepper.

*Crock pot version - Add turkey and other ingredients to crock pot and put on high for 6-8 hrs.

*On the stove version - same as above, except add beans later in cooking process. Cook for 2-3 hrs.

I'm not gonna lie- it was good. Next year we're gonna have to step it up even more. Which means more chili, more beer, more music, more people, and even more love and support (if that's even possible). Again, thank you to everyone who came or supported in every way. All of the Outdoor Mindset crew left feeling so proud and excited to be a part of something that could draw the amazing crowd that attended that event. We had Guides, Travels, Members, Friends, Family, and Supports all in one room and you could feel the strength in our mission to unite and inspire individual people affected by neurological challenges through a common passion for the outdoors the entire night.

And also a BIG thank you to OM Friend Caroline Bridges for being our photographer for the night!

Connecting to Connect

On Monday afternoon I was lucky enough to meet Rebekah Koenigbauer, director of marketing for First Descents. We enjoyed some patio time and shared tips on marketing for rapidly growing non-profit organizations.

First Descents is committed to curing young adults of the emotional effects of cancer and empowering them to regain control of their lives by experiencing whitewater kayaking and other challenging adventure sports in a safe, fun and supportive environment. This inspires us at Outdoor Mindset because we hope to accomplish the same - We unite and inspire people affected by neurological challenges to live big through a common passion for outdoor adventure.

Rebekah and I discussed the possibilty of having a First Descents past-participant write for our blog or serve as a mentor in our program. To us, this would be huge. In a sense, our organization is connecting to other organizations in order to connect people affected by neurological challenges with one another.

Learn more about First Descents.